Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers

Nojima, Natsuko

doi:https://doi.org/10.18910/71746

Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers

Nojima, Natsuko

Osaka Human Sciences, 2019, 5, 55-70

アクセス数:373件（2025-07-11 12:11 集計）

固定URL: https://doi.org/10.18910/71746

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タイトル	Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers
著者	NRID 1000000788614 1000000788614 著者名 Nojima, Natsuko
キーワード等	contested illnesses
	myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
	fibromyalgia (FM)
	paradox of diagnosis
	delegitimation of suffering
抄録	Diagnosis is a topic of discussion in recent studies on contested illnesses. Without an accurate medical diagnosis, sufferers face the risk that people may think they are malingering or faking. Therefore, receiving a diagnosis can be a critical event for sufferers because it legitimizes their illness. This paper explores how diagnosis impacts the illness experience of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) sufferers. The findings can be divided into the positive effects and limitations of diagnosis. Positive effects of diagnosis include achieving relief because of the legitimation of suffering and liberation from guilt; however, diagnosis posits several shortcomings. Often, despite being diagnosed, others fail to recognize the sufferers’ condition as a serious disease or as a disease at all. This paradox of diagnosis highlights the significance of delegitimizing sufferers’ experiences and the vulnerability of legitimate diagnosis.
出版者	Graduate School of Human Sciences, Osaka University
収録物名	Osaka Human Sciences
巻(号)	5
ページ	55-70
刊行年月	2019-03
言語	英語
ハンドルURL	https://hdl.handle.net/11094/71746
DOI	https://doi.org/10.18910/71746
NCID	AA12727839
アクセス権	open access
出版タイプ	Version of Record
カテゴリ	紀要論文 Departmental Bulletin Paper
カテゴリ	Osaka Human Sciences / Vol.5

資源タイプ	紀要論文
ローカル資源タイプ	紀要論文
DCMI資源タイプ	text
DCTERMS.bibliographicCitation	Osaka Human Sciences. 2019, 5, p. 55-70
DC.title	Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers
DC.creator	Nojima, Natsuko
DC.publisher	Graduate School of Human Sciences, Osaka University
DC.language' scheme='DCTERMS.RFC1766	英語
DC.type' scheme='DCTERMS.DCMIType	text
DCTERMS.issued' scheme='DCTERMS.W3CDTF	2019-03
DC.subject	contested illnesses
	myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
	fibromyalgia (FM)
	paradox of diagnosis
	delegitimation of suffering
DCTERMS.abstract	Diagnosis is a topic of discussion in recent studies on contested illnesses. Without an accurate medical diagnosis, sufferers face the risk that people may think they are malingering or faking. Therefore, receiving a diagnosis can be a critical event for sufferers because it legitimizes their illness. This paper explores how diagnosis impacts the illness experience of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) sufferers. The findings can be divided into the positive effects and limitations of diagnosis. Positive effects of diagnosis include achieving relief because of the legitimation of suffering and liberation from guilt; however, diagnosis posits several shortcomings. Often, despite being diagnosed, others fail to recognize the sufferers’ condition as a serious disease or as a disease at all. This paradox of diagnosis highlights the significance of delegitimizing sufferers’ experiences and the vulnerability of legitimate diagnosis.
DC.identifier	10.18910/71746
DC.format	71746
citation_title	Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers
citation_author	Nojima, Natsuko
citation_publisher	Graduate School of Human Sciences, Osaka University
citation_language	英語
citation_date	2019-03
citation_journal_title	Osaka Human Sciences
citation_volume	5
citation_firstpage	55
citation_lastpage	70
citation_public_url	https://hdl.handle.net/11094/71746
citation_doi_detail	10.18910/71746
citation_doi	https://doi.org/10.18910/71746

Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers

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