Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers

Nojima, Natsuko

doi:info:doi/10.18910/71746

このアイテムのアクセス数:117件（2020-10-25 21:13 集計）

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タイトル	Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers
著者	Nojima, Natsuko Nojima, Natsuko
キーワード等	contested illnesses
	myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
	fibromyalgia (FM)
	paradox of diagnosis
	delegitimation of suffering
抄録	Diagnosis is a topic of discussion in recent studies on contested illnesses. Without an accurate medical diagnosis, sufferers face the risk that people may think they are malingering or faking. Therefore, receiving a diagnosis can be a critical event for sufferers because it legitimizes their illness. This paper explores how diagnosis impacts the illness experience of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) sufferers. The findings can be divided into the positive effects and limitations of diagnosis. Positive effects of diagnosis include achieving relief because of the legitimation of suffering and liberation from guilt; however, diagnosis posits several shortcomings. Often, despite being diagnosed, others fail to recognize the sufferers’ condition as a serious disease or as a disease at all. This paradox of diagnosis highlights the significance of delegitimizing sufferers’ experiences and the vulnerability of legitimate diagnosis.
公開者	Graduate School of Human Sciences
掲載誌名	Osaka Human Sciences
巻	5
開始ページ	55
終了ページ	70
刊行年月	2019-03
NCID	AA12727839
URL	http://hdl.handle.net/11094/71746
言語	英語
DOI	info:doi/10.18910/71746
カテゴリ	紀要論文 Departmental Bulletin Paper
カテゴリ	Osaka Human Sciences / Vol.5

著者版フラグ	publisher
NII資源タイプ	紀要論文
ローカル資源タイプ	紀要論文
dcmi資源タイプ	text
DCTERMS.bibliographicCitation	Osaka Human Sciences.5 P.55-P.70
DC.title	Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers
DC.creator	Nojima, Natsuko
DC.publisher	Graduate School of Human Sciences
DC.language" scheme="DCTERMS.RFC1766	英語
DCTERMS.issued" scheme="DCTERMS.W3CDTF	2019-03
DC.identifier" scheme="DCTERMS.URI	http://hdl.handle.net/11094/71746
DC.subject	contested illnesses
	myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
	fibromyalgia (FM)
	paradox of diagnosis
	delegitimation of suffering
DCTERMS.abstract	Diagnosis is a topic of discussion in recent studies on contested illnesses. Without an accurate medical diagnosis, sufferers face the risk that people may think they are malingering or faking. Therefore, receiving a diagnosis can be a critical event for sufferers because it legitimizes their illness. This paper explores how diagnosis impacts the illness experience of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) sufferers. The findings can be divided into the positive effects and limitations of diagnosis. Positive effects of diagnosis include achieving relief because of the legitimation of suffering and liberation from guilt; however, diagnosis posits several shortcomings. Often, despite being diagnosed, others fail to recognize the sufferers’ condition as a serious disease or as a disease at all. This paradox of diagnosis highlights the significance of delegitimizing sufferers’ experiences and the vulnerability of legitimate diagnosis.
DC.identifier	info:doi/10.18910/71746
citation_title	Paradox of diagnosis : The positive effects and limitations of diagnosis in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) sufferers
citation_author	Nojima, Natsuko
citation_publisher	Graduate School of Human Sciences
citation_language	英語
citation_date	2019-03
citation_journal_title	Osaka Human Sciences
citation_volume	5
citation_firstpage	55
citation_lastpage	70
citation_public_url	http://hdl.handle.net/11094/71746
citation_keywords	contested illnesses
	myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
	fibromyalgia (FM)
	paradox of diagnosis
	delegitimation of suffering
citation_doi	info:doi/10.18910/71746

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