Changes in Families’ Caregiving Experiences through Involvement as Participants then Facilitators in a Family Peer-Education Program for Mental Disorders in Japan

Kageyama, Masako; Yokoyama, Keiko; Nakamura, Yukako; Kobayashi,  Sayaka

doi:info:doi/10.1111/famp.12194

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タイトル	Changes in Families’ Caregiving Experiences through Involvement as Participants then Facilitators in a Family Peer-Education Program for Mental Disorders in Japan
著者	Kageyama, Masako Kageyama, Masako
	Yokoyama, Keiko Yokoyama, Keiko
	Nakamura, Yukako Nakamura, Yukako
	Kobayashi, Sayaka Kobayashi, Sayaka
キーワード等	Family Education Program
	Caregivers
	Mental Disorders
	Program Evaluation
	Qualitative Research
	Self-help Groups
内容	This is the peer reviewed version of the following article: Kageyama, M., Yokoyama, K., Nakamura, Y. and Kobayashi, S. (2017), Changes in Families’ Caregiving Experiences through Involvement as Participants then Facilitators in a Family Peer‐Education Program for Mental Disorders in Japan. Fam. Proc., 56: 408-422. doi:10.1111/famp.12194, which has been published in final form at https://doi.org/10.1111/famp.12194. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
抄録	A family peer‐education program for mental disorders was developed in Japan, similar to existing programs in the United States and Hong Kong. Families that serve as facilitators in such programs may enhance their caregiving processes and, thereby, their well‐being. This study's aim was to describe how families’ caregiving experiences change, beginning with the onset of a family member's mental illness, through their involvement in a family group or peer‐education program as participants then facilitators. Thus, this study was conducted in a family peer‐education program for mental disorders in Japan. Group interviews were conducted with 27 facilitators from seven program sites about their experiences before, during, and after becoming facilitators. Interview data were coded and categorized into five stages of caregiving processes: (1) withdrawing and suppressing negative experiences with difficulty and regret; (2) finding comfort through being listened to about negative experiences; (3) supporting participants’ sharing as facilitators; (4) understanding and affirming oneself through repeated sharing of experiences; and (5) finding value and social roles in one's experiences. The third, fourth, and fifth stages were experienced by the facilitators. The value that the facilitators placed on their caregiving experiences changed from negative to positive, which participants regarded as helpful and supportive. We conclude that serving as facilitators may improve families’ caregiving processes.
公開者	Family Process Institute
掲載誌名	Family Process
巻	56
号	2
開始ページ	408
終了ページ	422
刊行年月	2015-11-02
ISSN	00147370
pmid	28591461
NCID	AA00182264
DOI (出版社版)	info:doi/10.1111/famp.12194
URL	http://hdl.handle.net/11094/75867
言語	英語
カテゴリ	学術雑誌論文 Journal Article

著者版フラグ	author
NII資源タイプ	学術雑誌論文
ローカル資源タイプ	学術雑誌論文
dcmi資源タイプ	text
DCTERMS.bibliographicCitation	Family Process.56(2) P.408-P.422
DC.title	Changes in Families’ Caregiving Experiences through Involvement as Participants then Facilitators in a Family Peer-Education Program for Mental Disorders in Japan
DC.creator	Kageyama, Masako
	Yokoyama, Keiko
	Nakamura, Yukako
	Kobayashi, Sayaka
DC.publisher	Family Process Institute
DC.language" scheme="DCTERMS.RFC1766	英語
DCTERMS.issued" scheme="DCTERMS.W3CDTF	2015-11-02
DC.identifier	info:doi/10.1111/famp.12194
DC.identifier" scheme="DCTERMS.URI	http://hdl.handle.net/11094/75867
DC.subject	Family Education Program
	Caregivers
	Mental Disorders
	Program Evaluation
	Qualitative Research
	Self-help Groups
DC.description	This is the peer reviewed version of the following article: Kageyama, M., Yokoyama, K., Nakamura, Y. and Kobayashi, S. (2017), Changes in Families’ Caregiving Experiences through Involvement as Participants then Facilitators in a Family Peer‐Education Program for Mental Disorders in Japan. Fam. Proc., 56: 408-422. doi:10.1111/famp.12194, which has been published in final form at https://doi.org/10.1111/famp.12194. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
DCTERMS.abstract	A family peer‐education program for mental disorders was developed in Japan, similar to existing programs in the United States and Hong Kong. Families that serve as facilitators in such programs may enhance their caregiving processes and, thereby, their well‐being. This study's aim was to describe how families’ caregiving experiences change, beginning with the onset of a family member's mental illness, through their involvement in a family group or peer‐education program as participants then facilitators. Thus, this study was conducted in a family peer‐education program for mental disorders in Japan. Group interviews were conducted with 27 facilitators from seven program sites about their experiences before, during, and after becoming facilitators. Interview data were coded and categorized into five stages of caregiving processes: (1) withdrawing and suppressing negative experiences with difficulty and regret; (2) finding comfort through being listened to about negative experiences; (3) supporting participants’ sharing as facilitators; (4) understanding and affirming oneself through repeated sharing of experiences; and (5) finding value and social roles in one's experiences. The third, fourth, and fifth stages were experienced by the facilitators. The value that the facilitators placed on their caregiving experiences changed from negative to positive, which participants regarded as helpful and supportive. We conclude that serving as facilitators may improve families’ caregiving processes.
citation_title	Changes in Families’ Caregiving Experiences through Involvement as Participants then Facilitators in a Family Peer-Education Program for Mental Disorders in Japan
citation_author	Kageyama, Masako
	Yokoyama, Keiko
	Nakamura, Yukako
	Kobayashi, Sayaka
citation_publisher	Family Process Institute
citation_language	英語
citation_date	2015-11-02
citation_journal_title	Family Process
citation_volume	56
citation_issue	2
citation_firstpage	408
citation_lastpage	422
citation_issn	00147370
citation_doi	info:doi/10.1111/famp.12194
citation_pmid	28591461
citation_public_url	http://hdl.handle.net/11094/75867
citation_keywords	Family Education Program
	Caregivers
	Mental Disorders
	Program Evaluation
	Qualitative Research
	Self-help Groups

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