How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy

Fujino, Haruo; Saito, Toshio; Matsumura, Tsuyoshi; Shibata, Saki; Iwata, Yuko; Fujimura, Harutoshi; Shinno Susumu; Imura, Osamu

doi:https://doi.org/10.1177/0883073814558334

How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy

Fujino, Haruo; Saito, Toshio; Matsumura, Tsuyoshi et al.

Journal of Child Neurology, 2015, 30(10), 1287-1294

アクセス数:553件（2025-08-15 07:42 集計）

固定URL: https://hdl.handle.net/11094/94662

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タイトル	How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy
著者	NRID 1000020707343 1000020707343 ORCID 0000-0002-8889-1199 0000-0002-8889-1199 researchmap permalink haruofujino haruofujino Scopus Author ID 56065490900 56065490900 著者名 Fujino, Haruo
	NRID 1000060538776 1000060538776 著者名 Saito, Toshio
	NRID 1000030549366 1000030549366 著者名 Matsumura, Tsuyoshi
	著者名 Shibata, Saki
	著者名 Iwata, Yuko
	NRID 1000020263246 1000020263246 著者名 Fujimura, Harutoshi
	著者名 Shinno Susumu
	NRID 1000020176506 1000020176506 著者名 Imura, Osamu
キーワード等	communication
	Duchenne muscular dystrophy
	mothers
	physicians
	qualitative study
内容	Fujino H., Saito T., Matsumura T., et al. How Physicians Support Mothers of Children with Duchenne Muscular DystrophyHow Physicians Support Mothers of Children with Duchenne Muscular Dystrophy. Journal of Child Neurology 30(10), 1287-1294 (2015); Copyright © 2015 SAGE Publications. https://doi.org/10.1177/0883073814558334.
抄録	Communicating about Duchenne muscular dystrophy and its prognosis can be difficult for affected children and their family. We focused on how physicians provide support to the mothers of children with Duchenne muscular dystrophy who have difficulty communicating about the condition with their child. The eligible participants were certified child neurologists of the Japanese Society of Child Neurology. Participants responded to questionnaires consisting of free descriptions of a vignette of a child with Duchenne muscular dystrophy and a mother. We analyzed 263 responses of the participants. We found 4 themes on advising mothers, involving encouraging communication, family autonomy, supporting family, and considering the childs concerns. These results provide a better understanding of the communication between physicians and family members who need help sharing information with a child with Duchenne muscular dystrophy. These findings will assist clinical practitioners in supporting families and the affected children throughout the course of their illness.
出版者	SAGE Publications Inc.
収録物名	Journal of Child Neurology
巻(号)	30(10)
ページ	1287-1294
刊行年月	2015-09-01
言語	英語
ハンドルURL	https://hdl.handle.net/11094/94662
PISSN	08830738
eISSN	17088283
関連情報 (isVersionOf)	DOI (出版社版) https://doi.org/10.1177/0883073814558334
アクセス権	open access
出版タイプ	Accepted Manuscript
カテゴリ	学術雑誌論文 Journal Article

資源タイプ	学術雑誌論文
ローカル資源タイプ	学術雑誌論文
DCMI資源タイプ	text
DCTERMS.bibliographicCitation	Journal of Child Neurology. 2015, 30(10), p. 1287-1294
DC.title	How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy
DC.creator	Fujino, Haruo
	Saito, Toshio
	Matsumura, Tsuyoshi
	Shibata, Saki
	Iwata, Yuko
	Fujimura, Harutoshi
	Shinno Susumu
	Imura, Osamu
DC.publisher	SAGE Publications Inc.
DC.language' scheme='DCTERMS.RFC1766	英語
DC.type' scheme='DCTERMS.DCMIType	text
DCTERMS.issued' scheme='DCTERMS.W3CDTF	2015-09-01
DC.identifier	https://doi.org/10.1177/0883073814558334
DC.subject	communication
	Duchenne muscular dystrophy
	mothers
	physicians
	qualitative study
DC.description	Fujino H., Saito T., Matsumura T., et al. How Physicians Support Mothers of Children with Duchenne Muscular DystrophyHow Physicians Support Mothers of Children with Duchenne Muscular Dystrophy. Journal of Child Neurology 30(10), 1287-1294 (2015); Copyright © 2015 SAGE Publications. https://doi.org/10.1177/0883073814558334.
DCTERMS.abstract	Communicating about Duchenne muscular dystrophy and its prognosis can be difficult for affected children and their family. We focused on how physicians provide support to the mothers of children with Duchenne muscular dystrophy who have difficulty communicating about the condition with their child. The eligible participants were certified child neurologists of the Japanese Society of Child Neurology. Participants responded to questionnaires consisting of free descriptions of a vignette of a child with Duchenne muscular dystrophy and a mother. We analyzed 263 responses of the participants. We found 4 themes on advising mothers, involving encouraging communication, family autonomy, supporting family, and considering the childs concerns. These results provide a better understanding of the communication between physicians and family members who need help sharing information with a child with Duchenne muscular dystrophy. These findings will assist clinical practitioners in supporting families and the affected children throughout the course of their illness.
DC.format	94662
citation_title	How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy
citation_author	Fujino, Haruo
	Saito, Toshio
	Matsumura, Tsuyoshi
	Shibata, Saki
	Iwata, Yuko
	Fujimura, Harutoshi
	Shinno Susumu
	Imura, Osamu
citation_publisher	SAGE Publications Inc.
citation_language	英語
citation_date	2015-09-01
citation_journal_title	Journal of Child Neurology
citation_volume	30
citation_issue	10
citation_firstpage	1287
citation_lastpage	1294
citation_doi	https://doi.org/10.1177/0883073814558334
citation_public_url	https://hdl.handle.net/11094/94662

How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy

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