How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy

Fujino, Haruo; Saito, Toshio; Matsumura, Tsuyoshi; Shibata, Saki; Iwata, Yuko; Fujimura, Harutoshi; Shinno Susumu; Imura, Osamu

doi:https://doi.org/10.1177/0883073814558334

How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy

Fujino, Haruo; Saito, Toshio; Matsumura, Tsuyoshi et al.

Journal of Child Neurology, 2015, 30(10), 1287-1294

Number of Access:640（2025-11-13 11:50 Counts）

Identifier to cite or link to this item: https://hdl.handle.net/11094/94662

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Title	How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy
Creator	NRID 1000020707343 1000020707343 ORCID 0000-0002-8889-1199 0000-0002-8889-1199 researchmap permalink haruofujino haruofujino Scopus Author ID 56065490900 56065490900 CreatorName Fujino, Haruo
	NRID 1000060538776 1000060538776 CreatorName Saito, Toshio
	NRID 1000030549366 1000030549366 CreatorName Matsumura, Tsuyoshi
	CreatorName Shibata, Saki
	CreatorName Iwata, Yuko
	NRID 1000020263246 1000020263246 CreatorName Fujimura, Harutoshi
	CreatorName Shinno Susumu
	NRID 1000020176506 1000020176506 CreatorName Imura, Osamu
Subject	communication
	Duchenne muscular dystrophy
	mothers
	physicians
	qualitative study
Description	Fujino H., Saito T., Matsumura T., et al. How Physicians Support Mothers of Children with Duchenne Muscular DystrophyHow Physicians Support Mothers of Children with Duchenne Muscular Dystrophy. Journal of Child Neurology 30(10), 1287-1294 (2015); Copyright © 2015 SAGE Publications. https://doi.org/10.1177/0883073814558334.
Abstract	Communicating about Duchenne muscular dystrophy and its prognosis can be difficult for affected children and their family. We focused on how physicians provide support to the mothers of children with Duchenne muscular dystrophy who have difficulty communicating about the condition with their child. The eligible participants were certified child neurologists of the Japanese Society of Child Neurology. Participants responded to questionnaires consisting of free descriptions of a vignette of a child with Duchenne muscular dystrophy and a mother. We analyzed 263 responses of the participants. We found 4 themes on advising mothers, involving encouraging communication, family autonomy, supporting family, and considering the childs concerns. These results provide a better understanding of the communication between physicians and family members who need help sharing information with a child with Duchenne muscular dystrophy. These findings will assist clinical practitioners in supporting families and the affected children throughout the course of their illness.
Publisher	SAGE Publications Inc.
Source Title	Journal of Child Neurology
Volume (Issue)	30(10)
Page	1287-1294
Date of Issued	2015-09-01
Language	English
Handle URL	https://hdl.handle.net/11094/94662
PISSN	08830738
eISSN	17088283
Relation.isVersionOf	DOI (Publisher Version) https://doi.org/10.1177/0883073814558334
Access Rights	open access
oaire:version	Accepted Manuscript
Category	学術雑誌論文 Journal Article

Resource Type	journal article
Local Type	Journal Article
DCMI Type	Text
DCTERMS.bibliographicCitation	Journal of Child Neurology. 2015, 30(10), p. 1287-1294
DC.title	How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy
DC.creator	Fujino, Haruo
	Saito, Toshio
	Matsumura, Tsuyoshi
	Shibata, Saki
	Iwata, Yuko
	Fujimura, Harutoshi
	Shinno Susumu
	Imura, Osamu
DC.publisher	SAGE Publications Inc.
DC.language' scheme='DCTERMS.RFC1766	English
DC.type' scheme='DCTERMS.DCMIType	Text
DCTERMS.issued' scheme='DCTERMS.W3CDTF	2015-09-01
DC.identifier	https://doi.org/10.1177/0883073814558334
DC.subject	communication
	Duchenne muscular dystrophy
	mothers
	physicians
	qualitative study
DC.description	Fujino H., Saito T., Matsumura T., et al. How Physicians Support Mothers of Children with Duchenne Muscular DystrophyHow Physicians Support Mothers of Children with Duchenne Muscular Dystrophy. Journal of Child Neurology 30(10), 1287-1294 (2015); Copyright © 2015 SAGE Publications. https://doi.org/10.1177/0883073814558334.
DCTERMS.abstract	Communicating about Duchenne muscular dystrophy and its prognosis can be difficult for affected children and their family. We focused on how physicians provide support to the mothers of children with Duchenne muscular dystrophy who have difficulty communicating about the condition with their child. The eligible participants were certified child neurologists of the Japanese Society of Child Neurology. Participants responded to questionnaires consisting of free descriptions of a vignette of a child with Duchenne muscular dystrophy and a mother. We analyzed 263 responses of the participants. We found 4 themes on advising mothers, involving encouraging communication, family autonomy, supporting family, and considering the childs concerns. These results provide a better understanding of the communication between physicians and family members who need help sharing information with a child with Duchenne muscular dystrophy. These findings will assist clinical practitioners in supporting families and the affected children throughout the course of their illness.
DC.format	94662
citation_title	How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy
citation_author	Fujino, Haruo
	Saito, Toshio
	Matsumura, Tsuyoshi
	Shibata, Saki
	Iwata, Yuko
	Fujimura, Harutoshi
	Shinno Susumu
	Imura, Osamu
citation_publisher	SAGE Publications Inc.
citation_language	English
citation_date	2015-09-01
citation_journal_title	Journal of Child Neurology
citation_volume	30
citation_issue	10
citation_firstpage	1287
citation_lastpage	1294
citation_doi	https://doi.org/10.1177/0883073814558334
citation_public_url	https://hdl.handle.net/11094/94662

How Physicians Support Mothers of Children with Duchenne Muscular Dystrophy

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